Diabetic neuropathy horrible pain in feet, need relief ideas and how often should Lantus be uped if still high
Son 19 years old, working on getting Lantus adjusted to the correct level. Readings are not yet in normal range and spike in mornings. pain normally wakes him up every morning and gets some relief during day but hurt off and on then in evening hurts bad to the point of crying and yelling in pain, just wants the pain to go away and not hurt. Seems like he will hurt forever and can’t see out of it. Hurt really bad when bringing readings down from 500′s then it seemed to get better when consistently down in the 300′s and falling lower at times and now when he is running in the upper 100′s average then jumping to upper 200′s AM the pain seems worse then when he was coming down from the 500′s. Taking pain med Hydrocodone, but it doesn’t seem to work very long and doesn’t help the shooting pains. We have been unable to get a call back from the doctor this week to check on upping Lantus. Taking Lyrica and Amitriptalin, Lantus 33u 1xday and Novalog 8u with meals with sliding scale adj added.
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Your poor son. I really think you should seek a second opinion. I was having a very difficult time controlling my sugar too. I didn’t even know I was a diabetic until I landed in the hospital with Diabetic Ketoacidosis. My sugar and ketones were in the 500′s and I was very sick! When I got home from the hospital, I tried to follow the diabetec diet I was given, but it just did not work. It wasn’t working in the hospital either. Anyway, I started testing my sugar before I ate and 2 hours after. I discovered that any kind of grain, even the tiniest amount, would send my sugar soaring! My sister, (whose husband is a doctor) told me to get a book called The Schwarzbein Principle. I did, along with The Schwarzbein Principle Cookbook and have been doing fine since starting on her program. My 14 day average is in the 90′s and I have been able to reduce my insulin (also Lantus) substantially. The pain in my legs and feet is almost nonexistent now. I think it would really help you too. Keep in mind that pain, stress and certain medications can also raise blood sugar levels. Different foods effect people differently, so be sure to test your son to see what is spiking his levels. Ask your doctor how to adjust his Lantus, as small amounts can have a profond effect. I hope this helps you and your son. I know how difficult this must be for both of you. Best wishes.
November 25th, 2009 at 3:48 amOk this is how I see it but I am not a Dr. If he is a brittle diabetic and the sugars are not staying in the 100-200 range then the Dr. needs to follow him more closely!!!! I would seek another dr. as soon as possible. Maybe he needs to be on an insulin pump which is not uncommon now a days. He would adjust the pump to how many carbs he takes in. Apparently the insulin amount he is on is not effective for him.For the neuropathy pain? There is a drug called neurotin that would aid in his pain. And a newer drug called Lyrica. THE DOCTOR SHOULD BE FOLLOWING HIS CASE CLOSELY!! I am disappointed that he has to suffer like this when it could be remedied with the right DR. I feel saddened for your son. I will pray for him! This is wrong. I would take him to the nearest emergency room and demand that he be admitted until his pain and blood sugars are under control. Maybe the Lyrica needs to be increased.
November 25th, 2009 at 3:48 amPlease check his diet. If he is not eating low glycemic carbohydrates in addition to protein and good fats, he will not be helping his condition.
I would recommend 5-minute oatmeal for the gammalinolenic acid (a natural chemical our bodies need), and salmon or tuna for the omega – 3. These natural substances can work to control pain.
For basic info on blood sugar imbalances, you may want to check out http://www.hufa.org. Suggest your son read "Entering the Zone" by Barry Sears, Ph.D. to have a better understanding on how his pain is increased by his diabetes, and how to eat to help himself.
November 25th, 2009 at 3:48 amIt sounds like you son may not be seeing the right doctor this stuff should already be cleared up. He needs to see an Endocrinologist (diabetes doctor) first off and needs to be referred to a Dietitian and Podiatrist. Sounds like he is not doing a good job of keeping his sugars in check – which is not uncommon in teens and young adults. He needs to learn to carb count he will have much better control that way. It’s typically 12-15 carbs per 1 unit of insulin – depends on the person (there is much more to it but this is not the place to learn). I suggest he start writing down everything. He needs to start in the morning with his first reading then eat breakfast (as long as his levels are below 200 he shouldn’t eat if his levels are high once he brings them down then he should have breakfast) he needs to write down what he ate and how much insulin he took then he should check up again about a half hour after he eats. He needs to continue to track his levels and food for the rest of the day and try to keep it up for a couple of weeks. This will aid the doctor in helping your son in getting himself under tight control. His levels should NEVER be at 500 and it doesn’t surprise me he is having pain in his feet if he is going that high. He is having problems with his blood circulation and the only thing he can do to fix or prevent further damage is to keep his glucose in check. He will not find relief until he does. My husband sometimes had problems with waking up high in the morning this can related to the dawn phenomenon. There are many things he can try to do to counter this but there really isn’t a “cure” for it. Sometimes just adjusting when you take your Lantus can help. If he takes it in the morning by 4 -8 am it’s wearing off so if he started taking it in the evening then it would be at it’s best during the night and peak in the afternoon and start to pitter off in the evening when you will be able to monitor it better. This helped when my husband was having that problem he would also avoid eating after dinner time and would make sure his levels were around 95 when he went to bed. For my husband getting on the pump did cure him of the problem he now wakes up around 90-110 every morning. He has always tried to maintain tight control.
Once your son learns to carb count I suggest he look into getting the pump he won’t have the highs and lows that he gets with the Lantus and he will be able to keep tighter control which will prevent him from having further damage done to his body. If he is having that much pain in his feet it is a serious problem and he needs to get with his doctors immediately and if they aren’t acting fast enough then he needs to find another doctor. I realize I don’t have all the info but it sounds like he may not be doing a good job of caring for himself so the pain is just a reminder of what he needs to be doing to stay healthy. I hope it all works out, feel free to email me if you need to talk or have any questions – I will do my best to help.
November 25th, 2009 at 3:48 amI don’t know that I understand all of this because I am not a doctor. What I see is a picture of diabetes not under control. Have you seen a diabetes specialist? This case needs closer management by someone -GP or specialist. Please get your son to see someone about this. It is not good that he has pain, but if it is brought under control soon, then he will have sensation longer.
November 25th, 2009 at 3:48 amYou need to take your son to the ER when you cannot get an approriate response from you physician. ASAP!!! This is not the place to get emergency medical information. Look for a dr. that has the following services available: CDE (diabetes educator), dietician, and endocrinology. Most childrens hospitals have spec clinics just for diabetes.
The sever pain you mention (source?) if gi accomp w/ nausea and vomiting could be dka….esp w/ glucose levels you are mentioning.
SEEK MEDICAL ATTENTION.
(Endocrinol. also have "self adjusting protocols" for increasing insulin at the appropriate increments.)
Just be safe.
November 25th, 2009 at 3:48 am